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Patient-reported outcomes and experiences assessment in women with breast cancer: Portuguese case study

dc.contributor.authorCoelho, Anabela
dc.contributor.authorKendir, Candan
dc.contributor.authorBarrenho, Eliana
dc.contributor.authorKlazinga, Niek
dc.contributor.authorPaiva, Cláudia
dc.contributor.authorSousa, Joaquim Abreu de
dc.contributor.authorGonçalves-Monteiro, Salomé
dc.contributor.authorRedondo, Patrícia
dc.contributor.authorBastos, Ana
dc.contributor.authorNogueira, Armanda
dc.contributor.authorGuedes, Fábio Botelho
dc.contributor.authorCosta, Andreia Silva
dc.contributor.authorGaspar, Tânia
dc.date.accessioned2023-02-28T15:25:44Z
dc.date.available2023-02-28T15:25:44Z
dc.date.issued2023-02
dc.description.abstractIn 2020, female breast cancer was the most commonly diagnosed cancer worldwide, representing the type of cancer with the highest incidence among women and the second most common cause of cancer death among women in all OECD countries. The conventional measures addressing the burden of breast cancer by measuring mortality, incidence, and survival do not entirely reflect the quality of life and patients' experience when receiving breast cancer care. The main objective of this study is to capture patient-reported outcomes and experiences in women with breast cancer in Portugal using methods developed for international benchmarking purposes, such as the OECD Patient-reported Indicators Surveys. The study included 378 women with breast cancer, with the age distribution being 19.8% aged 15 to 49 years and 80.2% aged 50 years and over. The data collection procedure and analysis followed the "OECD Breast Cancer Patient Reported Outcomes Working Group" protocol, allowing subsequent comparability with data from other OECD member countries. Most women were satisfied with the treatment outcome regarding the shape of their lumpectomy breasts when wearing a bra (96.1%) and with the equal size of both breasts (78.3%). Findings on the WHO QOL-BREF showed that women manifest a lower score in well-being when compared with the general population or populations living with chronic diseases. This study shows the feasibility of implementing and using patient-reported metrics (PROM and PREM) in breast cancer services in Portugal. Measuring PROMs and PREMs from Portuguese women receiving breast cancer care provides insightful evidence of the quality and value of cancer care.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationCoelho A, Kendir C, Barrenho E, Klazinga N, Paiva C, Sousa JA, et al. Patient-reported outcomes and experiences assessment in women with breast cancer: Portuguese case study. Int J Environ Res Public Health. 2023;20(4):2931.pt_PT
dc.identifier.doi10.3390/ijerph20042931pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.21/15725
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherMDPIpt_PT
dc.relation.publisherversionhttps://www.ncbi.nlm.nih.gov/pmc/articles/PMC9957006/pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.subjectBreast cancerpt_PT
dc.subjectHealth systempt_PT
dc.subjectPatient outcomespt_PT
dc.subjectPatient-reported experience measurespt_PT
dc.subjectPREMpt_PT
dc.subjectPatient-reported outcome measurespt_PT
dc.subjectPROMpt_PT
dc.subjectPublic healthpt_PT
dc.titlePatient-reported outcomes and experiences assessment in women with breast cancer: Portuguese case studypt_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.issue4pt_PT
oaire.citation.startPage2931pt_PT
oaire.citation.titleInternational Journal of Environmental Research and Public Healthpt_PT
oaire.citation.volume20pt_PT
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT

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