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Authors
Advisor(s)
Abstract(s)
Introdução: A psoríase é uma doença inflamatória crónica com
períodos de agravamento e remissão. A causa da psoríase é ainda desconhecida.
Crê-se que o comportamento dos indivíduos influencia o aparecimento de
mudanças no seu estado de saúde e sabe-se que esta doença tem uma
predisposição genética e que é influenciada por fatores ambientais. O tratamento
estará de acordo com as necessidades de cada utente. Objetivo: O objetivo deste
estudo é avaliar a validade e a fiabilidade dos questionários PDI (Psoriasis
Disability Index) e DLQI (Dermatology Life Quality Index), e através dos mesmos
avaliar a qualidade de vida dos utentes face à doença. Métodos: As recolhas de
dados foram realizadas no Hospital CUF Descobertas, em Lisboa. Foram incluídos
no estudo homens e mulheres com psoríase, utentes com idades superiores a 18
anos e com capacidade de compreender e concordar com os termos do estudo e
de dar consentimento livre e esclarecido por escrito. Resultados: Foram incluídos
no estudo 8 utentes com psoríase, 5 do sexo feminino e 3 do sexo masculino.
Constatou-se que o impacto da psoríase no dia-a-dia dos seus portadores é baixo
em ambos os questionários. As respostas mais dadas pelos utentes foram “nunca”
e “nada”. Conclusão: Quanto ao 1º objetivo as escalas PDI e DLQI revelaram-se
ser fiáveis e válidas. Relativamente ao 2º objetivo, verificou-se que impacto da
psoríase nestes utentes é muito baixo e pouco problemático uma vez que os
indivíduos apresentaram pontuações baixas em ambas as escalas.
ABSTRACT - Introduction: Psoriasis is a chronic inflammatory disease with periods of remission and aggravation. The cause of psoriasis is still unknown. It is believed that the behavior of individuals influences the emergence of changes in their health and it is known that this disease has a genetic predisposition and that it is influenced by environmental factors. The treatment will be according to the needs of each patient. Purpose: The purpose of this study is to evaluate the validity and the reliability of the PDI questionnaires (Psoriasis Disability Index) and DLQI (Dermatology Life Quality Index) and through them evaluate the quality of life of the patients who suffer from the disease. Methods: The data was collected at the CUF Discoveries Hospital, in Lisbon. The study included men and women with psoriasis, patients aged over 18 and able to understand and agree to the terms of the study and give informed consent in writing. Results: 8 patients with psoriasis - 5 females and 3 males - were included in the study. It was found that the impact of psoriasis on the patients’ daily lives is low in both questionnaires. The answers given by most patients were "never" and "nothing". Conclusion: As far as the first goal is concerned, the PDI and DLQI scales proved to be reliable and valid. In relation to the second goal, it was found that the impact of psoriasis on these patients is very low since the patients had lower scores in both scales.
ABSTRACT - Introduction: Psoriasis is a chronic inflammatory disease with periods of remission and aggravation. The cause of psoriasis is still unknown. It is believed that the behavior of individuals influences the emergence of changes in their health and it is known that this disease has a genetic predisposition and that it is influenced by environmental factors. The treatment will be according to the needs of each patient. Purpose: The purpose of this study is to evaluate the validity and the reliability of the PDI questionnaires (Psoriasis Disability Index) and DLQI (Dermatology Life Quality Index) and through them evaluate the quality of life of the patients who suffer from the disease. Methods: The data was collected at the CUF Discoveries Hospital, in Lisbon. The study included men and women with psoriasis, patients aged over 18 and able to understand and agree to the terms of the study and give informed consent in writing. Results: 8 patients with psoriasis - 5 females and 3 males - were included in the study. It was found that the impact of psoriasis on the patients’ daily lives is low in both questionnaires. The answers given by most patients were "never" and "nothing". Conclusion: As far as the first goal is concerned, the PDI and DLQI scales proved to be reliable and valid. In relation to the second goal, it was found that the impact of psoriasis on these patients is very low since the patients had lower scores in both scales.
Description
Mestrado em Fisioterapia
Keywords
Doença inflamatória Doença crónica Psoríase Qualidade de vida Questionário Inflammatory disease Chronic disease Psoriasis Quality of life Questionnaire
Citation
Costa D. Psoríase: o impacto da doença no dia-a-dia dos portadores [Dissertation]. Lisboa: Escola Superior de Tecnologia da Saúde de Lisboa/Instituto Politécnico de Lisboa; 2014.
Publisher
Escola Superior de Tecnologia da Saúde de Lisboa