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Data protection in sociological health research: a critical narrative about the challenges of a new regulatory landscape

2022-12Journal article Open access
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dc.contributor.authorRaposo, Hélder António
dc.contributor.authorMelo, Sara
dc.contributor.authorEgreja, Catarina
dc.date.accessioned2022-09-29T12:00:48Z
dc.date.available2022-09-29T12:00:48Z
dc.date.issued2022-12
dc.description.abstractThe recent implementation of the General Data Protection Regulation (GDPR) establishes a set of formal requirements that reinforce personal data protection, namely, those concerning the collection, treatment, and dissemination of data on research participants. With the application of this new legal provision at the European level, new types of restrictions are emerging, whose nature and reach intensify the tension between demands for privacy and scientific freedom in research. In this article, we take as a reference ongoing research taking place in Portugal, in the field of Sociology of Health, concerning the consumption of medicines by professionals exposed to high-performance pressure. Our main objective is to identify and analyse the implications of regulatory challenges faced in the research process and how the researchers managed and overcame them. We present a critical narrative that sheds light on the nature of the choices taken while also assessing the practical implications for the operationalisation of the research. We conclude by noting that, despite the benefits that may flow from the application of GDPR, the new requirements regarding the protection of personal data may override the ethical principles of scientific research and strengthen regulatory restrictions on conducting research. In the research concerned, the significant practical implications were indirect access to participants, a more time-consuming process in terms of participant adherence, and a temporal discrepancy between the different stages of recruitment.pt_PT
dc.description.versioninfo:eu-repo/semantics/publishedVersionpt_PT
dc.identifier.citationRaposo H, Melo S, Egreja C. Data protection in sociological health research: a critical narrative about the challenges of a new regulatory landscape. Sociol Res Online. 2022;27(4):1060-76.pt_PT
dc.identifier.doi10.1177/13607804221107676pt_PT
dc.identifier.urihttp://hdl.handle.net/10400.21/14993
dc.language.isoengpt_PT
dc.peerreviewedyespt_PT
dc.publisherSagept_PT
dc.relation.publisherversionhttps://journals.sagepub.com/doi/10.1177/13607804221107676pt_PT
dc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/4.0/pt_PT
dc.subjectData protectionpt_PT
dc.subjectRegulatory challengespt_PT
dc.subjectResearch ethicspt_PT
dc.subjectSociological health researchpt_PT
dc.titleData protection in sociological health research: a critical narrative about the challenges of a new regulatory landscapept_PT
dc.typejournal article
dspace.entity.typePublication
oaire.citation.endPage1076pt_PT
oaire.citation.issue4pt_PT
oaire.citation.startPage136078042211076pt_PT
oaire.citation.startPage1060pt_PT
oaire.citation.titleSociological Research Onlinept_PT
oaire.citation.volume27pt_PT
person.familyNameRaposo
person.givenNameHélder António
person.identifier2254036
person.identifier.ciencia-idC91C-9AF3-4B33
person.identifier.orcid0000-0002-3614-5661
rcaap.rightsopenAccesspt_PT
rcaap.typearticlept_PT
relation.isAuthorOfPublicationcd5e6220-0819-4b44-96be-971de0cf304e
relation.isAuthorOfPublication.latestForDiscoverycd5e6220-0819-4b44-96be-971de0cf304e

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